Got a one-page 'diagnosis'?

First, assess what you received

Red flags which could indicate an inadequate diagnostic assessment:

  • Report is one or two pages only

  • No evidence of multidisciplinary team involvement - look for: multiple professional signatures from different specialities, mention of team meetings or consensus discussions, evidence that psychologist, psychiatrist, speech therapist, and occupational therapist all contributed to assessment

  • No mention of ADI-R, ADOS-2, cognitive testing, or adaptive functioning assessment

  • ADOS-2 used as sole diagnostic tool - the tool is designed to be used alongside comprehensive developmental history (ADI-R) and other assessments. Using ADOS-2 scores alone to diagnose autism violates the tool's own administration guidelines.

  • Assessment conducted in a single session - a comprehensive autism assessment typically requires multiple appointments

  • Lack of detailed developmental history or current presentation

  • Tests scores without interpretative context or explanation of what they mean

  • No differential diagnosis consideration

  • No mention of SIGN 145 compliance

  • Contains no care planning or recommendations

  • Unverifiable professional registration numbers or qualifications

  • Signed by unqualified staff

Immediate steps

Verify credentials of the healthcare professionals involved in your assessment and diagnosis

  • Check any registration numbers against HCPC, GMC, or NMC registers

    Notes:

    • Registered Nurse' ('RN'), 'Medical Practitioner' or 'Doctor', and HCPC-regulated titles (such as 'Occupational Therapist", 'Speech and Language Therapist', 'Practitioner Psychologist') are protected healthcare titles under the UK law, and it is a criminal offence for anyone, with intent to deceive, to falsely represent themselves as being registered or qualified to use these titles when they are not.

    • A non-clinician is not authorised to make clinical diagnoses.

  • If your assessment was self-funded and conducted by a non-NHS (and not commissioned by NHS) independent clinic, check whether the service is registered with Healthcare Improvement Scotland (HIS)

Request a proper report

Contact the service and request a comprehensive diagnostic report that meets the SIGN 145 standards

  • Ask for detailed assessment methodology, scores, and clinical reasoning

Make a formal complaint

NHS diagnostic service:

Non-NHS external diagnostic service provider commissioned by the NHS*:

Independent diagnostic service:

  • If the service IS registered with Health Improvement Scotland (HIS):

    Raise a formal complaint with the service provider >> If unresolved, make a complaint to HIS.

  • If the service is NOT registered with HIS but should be:

    Raise a formal complaint to the service provider AND report to HIS both the lack of registration and the service quality concerns

Professional misconduct or suspected unlawful use of a protected healthcare title:

Document everything

  • Keep copies of all documents and correspondence, including emails, organised

  • Take written notes during phone calls with names, dates, and key points discussed

  • Save evidence of credentials of the healthcare professionals (or lack of thereof) and/or HIS registration status that can't be verified (e.g. save results of your search on a register into a PDF)

  • Keep receipts if you paid for the assessment privately

  • Maintain a log showing what you've submitted, to whom, and when.

  • Track response timeframes - check each organisation's complaint policy for specific deadlines that apply to both their responses and your submissions. For example, some bodies require that you file a complaint within 12 months from the date of when an incident occurred.